Many new things!!

So we attended two really good friends weddings this past week sean and lilly got married Kaelyn had a blast at the wedding until grandma came and got her and that was the first night she stayed away from me. It was really hard for me even though miss kaelyn did not seem to care. We also moved. I just got internet access back today. We had to wait for them to come hook it up. Our new house is only 3 dollars more a month then what we were paying for a 3 bdrm town home with a 1 car garage. So now we have a 2 car garage 4 bdrms 2 bathrooms a large back yard and the coolest land lord ever!!Kaelyn seems to be doing very well it took her a couple of days to adjust. She had a day or two of clinging on to me and bing confused about the new house. Now she just wants to explore. She is also walking side to side on things and imatating sounds like ooos and awhs . da da ma ma. Her physical therapest says it wont be long before she is walking. She is not cleared to eat yet (We have to get another swallow study) But, She stole a french fri from me and i had to dig it out of her mouth :( On a plus note i had to dig it out because she chewed it up!!!! She is learning so much. Well i will up date you more soon with pictures of our house. But for now i have pictures of kaelyn at the wedding :)

Kaelyns day of grocerys and laundry :D

So today kaelyn and i went to get grocerys with grandma and she again is helping me with the laundry. I am so happy to be this little angels mom. She is my world. Besides my other kids. They are all my world but. I wouldnt for anything trade her for a baby with out rts. she is still on pedialite and there has been no vomiting today. I got a refill of zantac at the pharmacy and i am happy to put her back on it. Cant hurt anything. Well i am tired but , I just thought i would drop a line and some photos from today :) Hope you are all having a good week.

7 hour day at childrens hospital.

So we ended up calling her doctors office to make an appointment for kaelyn because she at this point is on day number 3 of not holding food down. Her doctor isnt in but they can make an appointment with someone she has never seen. We make the appointment and cancel and end up at the emergancy room at childrens at 11 am. Kaelyn cant hold anything down we wait in the waiting room for 2+ hours . . . .We finally get back and sit there for 5 hours just to hear they dont know. They did check her urine it was fine her vitals are fine and she can hold down 120 ml of pedialite Now i am sure most of you know when it comes to children who silently aspirate such a thin liquid is scary if they are sick. Especially if they do not have a answer as to why she has no fever or coughing/ gaging and is just vomiting. Since we have been home she has vomited all over her bedding. I guess i just have to contact her doctor tomorrow. But if she has any issues we are going back in to the hospital to be admitted. If she aspirates and cant clear it there they can suction it out. Here we can with the bulb sucky thingy but its not as effective. I hope my baby gets well soon.

Day out with grandma

So we went out with grandma on 02-08-09 (Sunday) We went to a resturant and ate some really good corned beef and cabbage. Our waitress has a daughter named sara who is 19 months old with disabilitys like kaelyn and they sound like they are almost the same age devolpmentally so we are going to get the girls together for a playdate. This should be fun!! Before we left the resturant kaelyn vomited. She vomited all over the place the night before and now i am thinking she is sick. With kaelyn its hard to tell when she is sick she seems fine. so it would be hard to know. The picture in her car seat is after we got home you can see in her face that she is not feeling well. But , The pictures before that are before we left she looks perfectly fine. My poor princess.

Busy days and sleepy nights

The last couple of days have been really busy for us. We saw kaelyns doctor on monday kaelyn now weighs 21 lbs even!! We should throw a party for her!! I went to the doctors because i was worried and again there was nothing to worry about, What i thought looked like swelling in her hands is only chubbs from her gaining weight. The smell coming from her mouth is a sore throat nothing serious so far. Being tired well she is growing so her doctor was as happy as we could all possibly be its exciting!! kaelyn, has had the same doctor since she was born and we absolutly adore her. I reccomend her to everyone who has a child with special needs. She does her best to learn what she can and since kaelyn had a lot of respitory issues we played her shots by ear. For the longest time we saw holly once a week on tuesdays at 1 pm every week. She always makes time for us if we need it. Why cant all doctors be sooo awesome!! So yeah . . . .Kaelyn is doing really well I got some really cute pictures of her and daddy. Tomorrow is play group at wonderland and i am excited to see how she does. Kaelyn is starting to stand on her own too! I got her some signlanguage learning cards so we will be doing those and they have pictures on the back too. Exciting new things to come!! I hope you are all doing well!

Sleepy and getting bigger?

So just in the past few days i am noticing a huge weight gain for kaelyn and some breath issues. I wonder if i should be worried. I am of course calling her doctor but, I am just wondering have any of your kids been way under weight and just starting to gain massivly in a matter of days? Also she is very sleepy today she took her normal nap from 12-3 but she was crying for her bed at 8:25 last night instead of 9:00 and she slept the whole night through until i had to wake her at 8 am. I am probably going to take her to childrens. But just because in a room full of specialists rts is our specialty as parents of these angels i wanted to see if you guys had any insight? Maybe this has happened to your little one? I took her off her toy and she was asleep in my arms. I mean the pictures are adorable and maybe i am a worry wort lol. Anyways i will be posting this on the mailing list as well. Take care and have a good night!

Silly goose next tuesday not today!!

So today we got up and got ready for physical therapy. We wited 10 am came and went and no one came... So i called wonderland like uhmmm hi I think we may have missed you? Nope, It was next tuesday not today. Oh boy am i bad getting the week mixed up. Hopefully soon we can set it to 3 days a week at the same time every week. It just makes things easier to schedule :) I have a question for all you moms of the rts family. I am wondering due to not being able to eat have your kids suffered some sensory issues? Such as a need to ocd style lick everything in the room before playing? And if so how do you work through it? My daughter is tareing up her face and it makes me sad because i dont know what to do. It doesnt seem to hurt her its just chapped. I put baby boraxs face and lip balm on it constantly. Well we hope you all had a good day.